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The Ins and Outs of Newborn Screening, Amstedam 2026

Event start 12/10/2026

Event end 14/10/2026

PARTICIPANT EVALUATION FORM

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The Ins and Outs of Newborn Screening 12-14 October 2026, Amsterdam

PLEASE FILL OUT THE FORM DURING THE COURSE – CME CERTIFICATES WILL BE EMAILED WITHIN 5-10 DAYS AFTER THE COURSE

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1) Quality of the event:

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2) Relevance of the event:

Did the event fulfil your educational goals and expected learning outcomes?

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Was the presented information well-balanced and consistently supported by a valid scientific evidence base?

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If we were to organise this course again, for new delegates, what would you change?

How useful to you personally was each session?

The Ins and Outs of Newborn Screening

12-14 October 2026, Amsterdam

1Not useful2Fairly useful3Useful4Extremely useful
Session 1: What is Screening? Setting the Scene
An Introduction to Screening
Wilson and Jungner: If everyone is using the same principles, why are we all screening for different things?
It's All About the Test
Session 2: To Screen or Not to Screen?
Screening Populations vs Diagnosing Patients: The Benefits and the Harms
Gathering the Evidence
A Parent's Perspective, A Patient's Perspective
Session 3: Current Newborn Screening Programmes: Performance and Scope for Improvement
Long-Term Outcomes of Newborn Screening for IMDs
Cystic Fibrosis: Lessons from Beyond IMDs
Refining the Tests: Multiplexing to Provide Clarity
Session 4: New Screening Methodologies
The Generations Study: Applications of Neonatal Whole Genome Sequencing
The Challenges and Pitfalls in Genomic-Based Population Screening
The Grey Zone: What Happens When You Use Genetics for Newborn Screening?
Session 5: Workshops
Workshop 1: Does the Availability of a New Treatment Justify Introducing NBS?
Workshop 2: When Screening Doesn't Benefit the Baby
Workshop 3: Which Test to Use? Biochemistry or Genetics as First Line?
Discussion of Workshop Results
Session 6: Ethical Issues
Using Data Beyond NBS
Secondary Benefits of NBS
Session 7: Beyond NBS
Screen the Parents, Not the Baby
Commercial Genetic Testing: What Should Be Reported?
The Health Economics of Screening: How Do We Decide If It's All Worthwhile?

4) Suitability of formats used during the event

Was there adequate time available for discussions questions & answers and learner engagement?

1Never2Only rarely3Sometimes4Always/almost always

Can you indicate any innovative elements during the activity?

5) Ways the event affects clinical practice:

Will the information you learned be implemented in your practice?

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Based on what I learned today, I will improve my practice by incorporating the following (check all that apply):

Or, can you provide ONE example how this event will influence your future practice?

Of the patients you will see in the next month, about how many will benefit from the information you learned today?

6) Commercial bias

Did all the faculty members provide their potential conflict of interest declaration with the sponsor(s) as a second slide of their presentation?

1No2Yes but only a small part3Yes, the majority4Yes, all

Can you provide an example of biased presentation in this activity?

Do you agree that the information was overall free of commercial and other bias?

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